Ongoing Resources

Family Leader “Burning Issues”

En Español- Líder Familiar “Temas Candentes”

Please make sure to download and then open from your download’s folder so that when you edit this document you are able to save it with your comments (do not edit this in your web browser because the changes you make will not be saved). You will need to find this resource throughout the FLI so save it somewhere you can find it again.

Full Agenda of PEAL’s Virtual Family Leadership Institute Winter 2023

Learning On Your Own (LOYO) [For Session 2]

  1. Complete Burning Issue Worksheet Exercise 1- you can find this at the top of this page
  2. Create a Care Map for your child, learn how with this resource. (Care Map Example: Hagenbuch Care Map)
  3. OR, as an alternative to the Care Map  (You might find this more useful for an older child) Lifecourse, a person-centered planning framework – Charting the LifeCourse was created to help individuals and families of all abilities and all ages develop a vision for a good life, think about what they need to know and do, identify how to find or develop supports, and discover what it takes to live the lives they want to live. How to access: Visit 1. Watch the brief video 2. Scroll down to “Getting Started” and explore some of the tools 3. Using the tip sheet underneath, 3. Complete one of the trajectories or a support star (downloadable) for your child of any age. 4. How do I do this? Scroll down for a short video and examples for each (*Note: completing this for and not with your child is not the general expectation but you work can be used as a starting place for the conversation and use of this tool with your child.)
  4. Watch this short video,
  5. Read and reflect on:  Eleanor Roosevelt quote, “ Where, after all, do universal human rights begin? In small places, close to home – so close and so small that they cannot be seen on any maps of the world. Yet they are the world of the individual person; the neighborhood he lives in; the school or college he attends; the factory, farm or office where he works. Such are the places where every man, woman and child seeks equal justice, equal opportunity, equal dignity without discrimination. Unless these rights have meaning there, they have little meaning anywhere. Without concerned citizen action to uphold them close to home, we shall look in vain for progress in the larger world.”
Reflective thought question: what are the barriers preventing your child (of any age) that are preventing your child from being who they want to be and/or what they want to do?  What barriers are the world throwing at them? Are you creating any barriers?

Learning On Your Own (LOYO) [For Session 3]

  1. Research your Burning Issue topic to gather data and build your case  
  2. The Rights Done Right: The Procedural Safeguards in Plain Language Videos (View the Procedural Safeguards Video Assignments here
  3. Upload your Care Map or Life Course Tool (please de-identify it) to Padlet and add feedback to three others. (For tips on using Padlet, check our this resource.)

Learning On Your Own (LOYO)

  1. Have your child’s most recent evaluation accessible during our next session
  2. What part of the IEP is most important to you to maximize your child’s inclusion? (Please write it down a sentence or two and have it out for the next session)
  3. Briefly summarize your Burning Issue on Padlet 

For additional, non-required learning:

A Family’s Guide to Understanding Annotated Evaluation and Reevaluation Reports (Scroll 1/3 of the way down to see the links for “A Family’s Guide to Understanding Annotated Evaluation and Reevaluation Reports”. You may view the video from here or go to the YouTube video which can be found by clicking on the YouTube button on the bottom left of the video screen. The You Tube video will have subtitles available. View the YouTube playlist here. The folder feature described in the beginning of the video is no longer available.)

Tuesday January 31st, 2023

Learning On Your Own (LOYO)

  1. Watch the Six Word Memoir video
  2. Create your own 6 Word Memoir and post here
  3. Website Scavenger Hunt

For those of you with children who are older, many items on the list could still be relevant and potentially helpful for you. Pick 3-4 of those and then  

A. Look up your Center for Independent Living. You can find that at and learn how they may be of help. 

B. Explore one of these Future Planning Tools: 

ABLE accounts

Special Needs Trusts Resources (scroll down)

A chuck of the Wrightslaw Future Planning tool

Learning On Your Own (LOYO)

*we did update some of the questions so if you did the previous ones already no worries!
Review your district’s discipline and bullying policy and answer these questions:
1. What concrete guidance does the policy provide about addressing and implementing discipline policy?​ 
2. Did your district outline a hierarchy of steps that would lead to suspension? 
3. Does your district have a solid plan to address bullying? If you have had experience with that issue, is the plan implemented according to the policy?

Tuesday February 14th, 2023

Learning On Your Own (LOYO)

  1. Come prepared with a 90 second elevator speech that you will share in smaller groups. Email [email protected] if you have any questions!

View the recording for PEAL’s Winter Lunch Bites: Know Your Rights! Procedural Safeguards from February 15th at noon.

Tuesday February 21st, 2023

If you are having issues accessing these materials, please reach out to Anya Fredrickson at [email protected]